Hallo, Ik was nieuwsgierig om deze app uit te proberen maar mijn eerste indruk is dat het wat tegenvalt, jammer genoeg. Misschien gebruik ik het nog niet goed?. Myasthenia Gravis is voor iedereen anders, en dat het lijstje hoe je er aan toe bent nu net weer dat rottige lijstje blijkt te zijn waar ik... ver más
How does myasthenia gravis actually cause swallowing problems? I once got to a point where I literally couldn't swallow my own saliva, my throat just wouldn't move no matter how hard I tried. It was terrifying...
I have been living with MG since I was about 18 months old. I am 43 now and have had several episodes and long remission periods. In 2018 I had a thymectomy. Since then my symptoms are almost gone. According to weather changes, I feel slight worsening of my droopy eyelids and general weakness which... ver más
Hello friends, I receive many questions about how I went from severe seronegative generalized Myasthenia Gravis to almost complete remission (with only a slight, nearly unnoticeable ptosis remaining that continues to improve over time), so I wanted to share everything. It started about three years... ver más
Hello everyone! I was diagnosed with generalized MG 3 years ago and thymoma (which has been removed). After a long struggle I am now finally being able to start living a normal life again. I am on Imuran and doing well, and no longer need mestinon. I was considering becoming a vet nurse but worry th... ver más
Hello All, Hoping to Jumpstart some more chatter on the forum. I am having difficulty finding a seronegative MG specialist near cincinnati OH. I am strongly clinically suspected of MG doctors agree but SFEMG was normal. I have access to mestinon and IVIG which helps but finding not having an offici... ver más
I was diagnosed with MG in early 2023 after ptosis appeared in my left eye. Other than that, I haven’t had any symptoms and I’ve been on treatment since. It’s been a long stretch with no changes. Has anyone else had MG stay quiet for a long time before anything else showed up? Just trying to underst... ver más
Hello! I noticed the first symptoms early 2023. Since september 2024 I've tested 3x positive for AChR but neurologytests (nov 2025) find me atypical. Therefore I live without diagnosis or treatment for MG. It's hard & scary because at the same time I've been fighting recurrent Graves Disease for 10... ver más
I’m just checking out the forum section! Anyone want to share a favorite little trick for making life easier? Mine is to set an early alarm to take my Mestinon (ER) and go back to sleep for a bit so when I’m ready to get up it has kicked in a bit more :)
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