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VividJackal8490· 5 დღე წინ
ამან გამიუმჯობესა მიასთენია გრავისიMy Myasthenia Gravis remission story
Hey guys,
I've been getting a lot of questions about how I went from severe generalized myasthenia gravis to almost full remission (with only a very slight ptosis remaining) so I wanted to share everything.
It started about three years ago, in the spring. I noticed I was having trouble breathing. Nothing extreme, but I often felt like I was gasping for air, and it didn't make any sense to me. I wasn't a smoker, didn't use drugs, and genuinely considered myself a healthy person. The doctors I saw chalked it up to anxiety, especially given the stress of working as a software developer. So I put it out of my mind.
About three months later, in the summer, one of my eyelids started drooping slightly. Again, I blamed stress and fatigue, grabbed some eye drops, and moved on.
Then things escalated quickly.
Within a month, the eye symptoms became much worse. One morning I woke up, walked to the market, and suddenly found myself struggling with blurry, almost double vision. That moment frightened me. From then on, everything seemed to progress at once.
Weakness started spreading through my arms, legs, lips. Walking became difficult. Chewing became difficult. One eyelid closed almost completely and felt nearly impossible to open. Everyday life had turned into a struggle.
After one to two months of tests (MRI, nerve conduction studies, antibody analysis) I was diagnosed with severe generalized seronegative myasthenia gravis. My doctors told me I was very close to a breathing crisis.
That moment was devastating. My normal life felt like it was over.
My neurologist prescribed Mestinon and prednisone. They helped a little, but I noticed something that troubled me: the longer I took them, the slightly worse my symptoms seemed to get. When I mentioned this, the next steps proposed were thymectomy, plasma exchange, and possibly immunosuppressants.
I was deeply resistant to going further down that road because of the potential side effects. So I made a decision. I had to figure this out myself.
I genuinely believed there had to be a reason why this had happened to me. Autoimmune diseases don't simply appear from nowhere. There are triggers, patterns, underlying causes. I became obsessed with finding mine.
I started reading everything I could: scientific papers, recovery stories, patient forums. A few themes kept surfacing: very strict diets, gut health, parasite removal in some cases, and high-dose vitamin D through something called the Coimbra Protocol, always under medical supervision.
At that point, I thought: what do I have to lose?
So I tried an extremely strict elimination diet for one month. I ate only avocado, wild red rice, watermelon, peach, small amounts of honey, cucumber with salt and black pepper, and herbal teas like dandelion and green tea.
That was it.
And within that one month, without changing my medication at all, I felt significantly better. My symptoms became less severe. Something was different.
Yes, I was hungry basically the entire time. But something was clearly working.
I told my doctor, and she suggested it was likely placebo. That didn't sit right with me. I knew my body, and this wasn't random.
So I kept digging.
I started thinking: if diet and fasting are helping this much, maybe the root cause is in the gut.
I went to a gastroenterologist and asked for a full workup. The results genuinely shocked me. I had a severe Helicobacter pylori infection at very high levels, hidden stomach bleeding from gastritis, deficiencies in vitamin B, iron, and vitamin D, and a food sensitivity test that showed I was reacting to 18 out of 60 foods. Including things I ate every day, like eggs, bread, banana, chicken, and red meat.
Around the same time, I noticed my Apple Watch was flagging bradycardia. My heart rate was dropping to 43 to 46 BPM during sleep, even though I wasn't doing any heavy training. Cardiac tests came back normal. Later I found research suggesting that infections and gut inflammation can contribute to this kind of heart rate irregularity.
Everything started to connect. Gut issues feeding into inflammation, inflammation driving immune dysfunction, immune dysfunction triggering neurological symptoms.
So I followed the treatment plan. Two rounds of antibiotics to clear the H. pylori infection, followed by probiotics and a strict diet as much as I could sustain it. I corrected my vitamin and mineral deficiencies, and on my own I added 10,000 IU of vitamin D daily for three months.
And then, within about three months of starting that protocol, I reached almost full remission.
The weakness in my limbs was gone. Chewing was no longer a problem. My energy returned. My eye opened again, with only the slightest trace of ptosis remaining. Compared to where I had been, it genuinely felt like getting my life back.
I'm currently in a monitoring phase, waiting a couple more months before rechecking everything. I wasn't perfect throughout this process. I'm Georgian, and our food is honestly too good to resist sometimes. But I stayed consistent enough for it to work.
Now I'm back in the gym. I feel strong again.
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The most important thing I learned through all of this is to track everything. Your body gives signals. There are patterns and there are triggers, and paying attention to them is worth it.
I also want to be honest about something: finding a pattern is not the same as finding a cause. I know that. The fact that treating my gut issues coincided with my remission doesn't prove one caused the other. Medicine is far more complex than that, and I'm not a doctor. What I can say is that it worked for me, and when nothing else was moving forward, I chose to try something under medical supervision. I think that's a reasonable thing to do when you're out of options and the risk is manageable.
This doesn't mean it will work for everyone. Every case is different, every body is different, and my story is mine alone. Please don't abandon your doctors or your treatment plan because of what I experienced. Work with them.
Which is exactly what Imulogy is meant to support. Not to replace your doctor, but to make your conversations with them better. It's easy to forget a symptom you had three weeks ago, or to lose track of when something changed, or to arrive at an appointment and not be able to explain the full picture of what you've been experiencing. This tool is simply a way to hold that story together: your symptoms, your patterns, your timeline, so you can walk in with everything in one place and nothing left out.
I truly wish all of you health and recovery. Don't give up. There's always something you haven't discovered yet.
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Thank you so much for sharing your story!
This was incredibly helpful to read. Thank you so much for sharing your journey this openly. I’m also navigating my own experience, and what you said about tracking patterns and really listening to your body resonated with me a lot. I recently started using Imulogy and noticed co…