How does myasthenia gravis actually cause swallowing problems? I once got to a point where I literally couldn't swallow my own saliva, my throat just wouldn't move no matter how hard I tried. It was terrifying...
I have been living with MG since I was about 18 months old. I am 43 now and have had several episodes and long remission periods. In 2018 I had a thymectomy. Since then my symptoms are almost gone. According to weather changes, I feel slight worsening of my droopy eyelids and general weakness which... see more
Hello friends, I receive many questions about how I went from severe seronegative generalized Myasthenia Gravis to almost complete remission (with only a slight, nearly unnoticeable ptosis remaining that continues to improve over time), so I wanted to share everything. It started about three years... see more
Hello everyone! I was diagnosed with generalized MG 3 years ago and thymoma (which has been removed). After a long struggle I am now finally being able to start living a normal life again. I am on Imuran and doing well, and no longer need mestinon. I was considering becoming a vet nurse but worry th... see more
Hello All, Hoping to Jumpstart some more chatter on the forum. I am having difficulty finding a seronegative MG specialist near cincinnati OH. I am strongly clinically suspected of MG doctors agree but SFEMG was normal. I have access to mestinon and IVIG which helps but finding not having an offici... see more
I was diagnosed with MG in early 2023 after ptosis appeared in my left eye. Other than that, I haven’t had any symptoms and I’ve been on treatment since. It’s been a long stretch with no changes. Has anyone else had MG stay quiet for a long time before anything else showed up? Just trying to underst... see more
Hello! I noticed the first symptoms early 2023. Since september 2024 I've tested 3x positive for AChR but neurologytests (nov 2025) find me atypical. Therefore I live without diagnosis or treatment for MG. It's hard & scary because at the same time I've been fighting recurrent Graves Disease for 10... see more
I’m just checking out the forum section! Anyone want to share a favorite little trick for making life easier? Mine is to set an early alarm to take my Mestinon (ER) and go back to sleep for a bit so when I’m ready to get up it has kicked in a bit more :)
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