TH
Thea Mikadze· Apr 1170
Apenas a partilhar a minha históriaHello,
I have been living with MG since I was about 18 months old. I am 43 now and have had several episodes and long remission periods. In 2018 I had a thymectomy. Since then my symptoms are almost gone. According to weather changes, I feel slight worsening of my droopy eyelids and general weakness which is restored after good rest. I am still on prednisone and immuran. No mestinon any longer.
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Thank you so much for sharing your story Thea!
Wish you all the health!
Thanks for sharing your story! I'm 41, I don't have any abnormal findings regarding my thymus. I have generalized MG that just seems to be worsening. Was your thymus abnormal or did you push for a thymectomy regardless?
How long have you been taking immuran? any side effects?