AN
Anouche· Feb 196
Just sharing my storyAChR+ and Graves: waiting for diagnosis and treatment for MG
Hello!
I noticed the first symptoms early 2023. Since september 2024 I've tested 3x positive for AChR but neurologytests (nov 2025) find me atypical. Therefore I live without diagnosis or treatment for MG. It's hard & scary because at the same time I've been fighting recurrent Graves Disease for 10 years without reaching remission, even after thyroidectomy in 2021. I feel very lost, sad, struggling. I don't understand why no doctor (GP, endocrinologist, neurologist) acts with some sense of urgency, while my life is totally destroyed. Warm greetings from Belgium
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Hi! I also had severe Myasthenia Gravis symptoms, I couldn't move, and my life felt pretty bleak. What worked for me was becoming very conscious of my diet. I even started fasting, and eventually, I tested for Helicobacter pylori (which is very easy to check). It turned out my gu…
I’m in a very similar situation symptoms, confusing tests, doctors calling it “atypical,” and no clear diagnosis or treatment plan.
I totally feel you on the lack of sense of urgency and being written off by specialists! It took me ending up in crisis and hospitalized before I was diagnosed (even then it was still a push from my husband!) I liked the neurologist that consulted on my case at the hospital so I…