JA
jackie zimmer· Mar 44
Question?Does anyone know a good seronegative MG specialist near Cincinnati OH?
Hello All,
Hoping to Jumpstart some more chatter on the forum. I am having difficulty finding a seronegative MG specialist near cincinnati OH. I am strongly clinically suspected of MG doctors agree but SFEMG was normal. I have access to mestinon and IVIG which helps but finding not having an official dx harmful as I navigate the medications on the list of No for people with MG. Im having more of a flare since im using so much benadryl to combat aseptic meningitis from my IVIG and increasing my magnesium supplements to high levels seems to be making things worse also but keeping me from being constipated. I feel like im running in circles. Hoping for some help.
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Hi! Seronegative MG can be really hard to get officially diagnosed, even when symptoms and treatment response point strongly to it. It might help to reach out to a neuromuscular specialist at a large academic center near Cincinnati, since they usually have more experience with se…
Thank you. So far havent had good luck with the university academic center here who did the SFEMG. But am following a sub on Facebook for seronegative and they have a doctor's list. But not aton of options and I wanted to know if anyone had first hand or second hand accounts of…
personally my doctor STRICTLY said to me to never take any magnesium based supplements if its absolutely necessary... Btw how did they confirm that you have Seronegative MG?
I'm still waiting on official confirmation. I follow the seronegative MG group on Facebook and they have a list of seronegative friendly doctors since the neuromuscular doctor who did my SFEMG believes that it is exclusionary of MG which is just not true. It can only confirm if…
Because diagnosis MG is not happening, although 3x positive tested on AChR last 18 months, out of anger I boldly experimented & took magnesium-supplements against exhaustion + cramps in legs en feet: nothing bad happened! I also live with another autoimmune problem : uncontrolled…
Did you find specialist near Cincinnati? I am also looking for good Seronegative specialist here....
There is a seronegative Myasthenia Gravis Facebook group that I joined its private and you fill out some questions and if you dont get a response/in after a few days just message the admin they are super nice. They have a list of doctors. But so far I would say I havent found on…