IR
Irakli Kverenchkhiladze· Mar 3079
This improved my MGMy Myasthenia Gravis remission story
Hello friends,
I receive many questions about how I went from severe seronegative generalized Myasthenia Gravis to almost complete remission (with only a slight, nearly unnoticeable ptosis remaining that continues to improve over time), so I wanted to share everything.
It started about three years ago, in the spring. I noticed I was having trouble breathing. It wasn't anything extreme, but I often felt like I couldn't get enough air, and it was baffling to me. I didn't smoke, didn't use drugs, and considered myself a truly healthy person. The doctors I consulted attributed it to anxiety due to my profession – I am a developer (programmer).
About three months later, in the summer, one of my eyelids began to droop slightly. Again, I blamed it on stress and fatigue, bought some eye drops, and moved on with my life. Then, things developed rapidly.
Within a month, the eye symptoms worsened significantly. One day I woke up and discovered I had double vision. That moment terrified me. After that, it felt as though everything began to progress simultaneously.
Weakness started spreading to my arms, legs, and lips. Walking became difficult. Chewing became a struggle. One eyelid closed almost completely, and it was nearly impossible to open. Daily life became a battle.
After a couple of months of testing (MRI, nerve conduction studies, antibody tests), I was diagnosed with severe generalized seronegative Myasthenia Gravis. This was incredibly difficult for me because life became completely different.
My neurologist prescribed Kalymin 60mg (Pyridostigmine). Symptomatically, I noticed something that I didn't like: the longer I took the medication, the more it felt like my symptoms were slightly worsening. When I told my doctor, they suggested a thymectomy, plasmapheresis, and immunosuppressants.
Because of the potential side effects, I was adamantly against continuing down that path. So, I made a decision: I had to figure this out myself.
I truly believed there had to be a reason why this happened to me. Autoimmune diseases don't just appear out of nowhere. There are causes, and I became obsessed with finding them.
I started reading everything I could: scientific articles, remission stories, patient forums. A few themes kept appearing: strict diets, gut health, parasite cleanses in some cases, and high doses of Vitamin D via the so-called "Coimbra Protocol," always under medical supervision.
At that point, I thought: What do I have to lose?
So, for one month, I tried an extremely strict elimination diet. I ate only avocado, wild red rice, watermelon, peaches, small amounts of honey, cucumber with salt and black pepper, and drank herbal teas like dandelion and green tea.
That was it.
And during that month, without changing my medications at all, I felt significantly better. My symptoms became less severe. Something changed.
Yes, I was essentially hungry the entire time. But something was clearly working.
I told my doctor, and he told me it was likely a placebo. That didn't feel right to me. I knew my body, and this wasn't accidental.
So I continued my search.
I started thinking: if diet and fasting are helping me this much, perhaps the root cause is in the gut.
I went to a gastroenterologist and requested a full examination. The results were interesting. I had a very high level of Helicobacter pylori infection, occult bleeding in the stomach due to gastritis, deficiencies in Vitamin B, Iron, and Vitamin D, and a food sensitivity test showed that I reacted to 18 out of 60 products. These included things I consumed every day, such as eggs, bread, bananas, chicken, red meat, etc.
Around the same time, I noticed my digital watch was showing bradycardia. During sleep, my heart rate would drop to 43–46 bpm, even though I wasn't an athlete (where such a heart rate might be normal). Cardiology tests were normal. Later, I found studies indicating that infections and gut inflammation can contribute to such heart rate irregularities.
Everything began to connect. Gut issues fuel inflammation, inflammation causes immune dysfunction, and immune dysfunction leads to neurological symptoms.
So, I followed a treatment plan. Two courses of antibiotics to clear the H. pylori infection, followed by probiotics and a strict diet as much as I could maintain it. I corrected my vitamin and mineral deficiencies and independently added 10,000 IU of Vitamin D daily for three months.
Then, about three months after starting this protocol, I achieved almost total remission.
The weakness in my limbs vanished. Chewing was no longer a problem. My energy returned. My eye opened again, and only the tiniest trace of ptosis remained. Compared to the state I was in, I truly felt like I had gotten my life back.
I am currently in an observation phase, waiting another couple of months before re-checking everything.
Now, I am back in the gym. I feel strong again.
The most important thing I learned from all of this is that you must track and record everything. Your body gives you signals. There are patterns and triggers, and they are absolutely worth paying attention to.
I also want to add: finding a correlation does not mean you've found the definitive cause. The fact that treating my gastrointestinal issues coincided with my remission doesn't prove that one caused the other. Medicine is much more complex than that, and I am not a doctor. What I can say is that this worked for me, and when nothing else was producing results, I decided to try something new under medical supervision. I think it is a reasonable step when you have no other options left and the risk is low.
This doesn't mean this method will help everyone. Every case is different, every organism is different, and my story is mine alone. Please do not give up on your doctors or your treatment plans because of what I experienced. Work with them.
I wish you all health!
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Thank you so much for sharing your story!
This was incredibly helpful to read. Thank you so much for sharing your journey this openly. I’m also navigating my own experience, and what you said about tracking patterns and really listening to your body resonated with me a lot. I recently started using Imulogy and noticed co…
Wow! I'm so happy to finally find someone who was able to go into remission just with a diet.
Hey, it wasn't just the diet... antibiotics played a big role too, along with changing my whole lifestyle. I really focused on exercising as much as I could, doing my best to relieve stress, and staying hopeful and faithful that one day it would all go away. So for me, it was tru…